Leeds endometriosis sufferer’s warning over ‘silent assassin’

A woman who loses a kidney, has urged others due to endometriosis in her womb and her vagina and parts of the bowel that she is described as a “silent killer”.

Leeds’ 47 -year -old Stacey began developing the symptoms of the disease 25 years ago, but was not confirmed until the end 2010.

In 2022, she had a complete hysterctomy to remove her ovaries and pregnancy, but the disease returned and she did robotic surgery late last year when she was told that her right kidney failed.

Stacey, who said that she was doing well now, urged other women to get help and get support if she had any concern: “Don’t ignore it, listen to your body, take help.”

Endometriosis is a condition in which cells similar to the womb grow in other parts of the body, usually in the pelvic region.

Symptoms include severe pain and heavy duration and about 1.5 million women in the UK are considered the condition.

Stacey said that before her latest surgery in November, her urologist told her that she was probably suffering from kidney failure for six months.

“But I had no pain, no infection, nothing that suggested that anything was wrong with that kidneys, so it was a silent killer,” he said.

Stacey underwent robot surgery in the Leeds General Information in November 2024, with a team of doctors of three subjects involved in the operation.

This was done using a robot with four mechanical weapons and it took four hours to complete it. The next day the Stacey was discharged.

James Tibbot, Leads Teaching Hospitals, a clinical lead for gynecology, who performed stacey surgery, stated that her position was “bad dream accessories, the best way” before the operation.

“Stacey disease was incredibly interesting because there was a wound on the bowel, the whole thickness through the vagina, which then swept around the right to get out the right kidney,” he explained.

Mr. Tibot said that doing keyhole surgery on the stacey would “almost impossible, or take the whole day of operation”.

29 -year -old Aimee Bulloch from Liversedge, Leeds undergone robotic surgery at Leeds Teaching Hospitals in November last year after developing symptoms of endometriosis for the first time at the age of 14.

Ms. Buloch, whose mother also had the condition, said: “I saw my mother going through the same thing that I had a brief idea what it could be.

“It was placed below for irritable bowel syndrome. I was told that the painful period was normal and I would get out of it, but it was equally spoiled that I got.”

Ms. Buloch said that she eventually found herself “struggling with basic physical actions”.

“It was difficult to go to the toilet. I was unable to go out without knowing where the toilet would be. The pain was painful.”

The endometriosis of Ms. Buloch eventually influenced her bowel, appendix and left ovary.

After undergoing robot surgery at Leeds Teaching Hospitals, she said she was much better and believed that her fertility should be unaffected.

The Leeds Teaching Hospitals Trust has been awarded the provisional position as a recognized endometriosis treatment center by the British Society for Gynecological Endoscopy.

Mr. Tibbot said that the use of robot operating theater was enabling more patients such as stacey and Ms. Buloch – and they were recovering more quickly.

In fact, he said, he was able to perform surgery on six patients recently in just one day.

Both Stacey and Ms. Buloch recently met each other for the first time.

He said that he was doing well and although there was no cure for endometriosis at present, he hoped that he would be managed well in the future.

Stacey said that her priority was now to keep the remaining kidney healthy.

He said that any woman who was concerned about endometriosis should take action as soon as possible.

“Don’t ignore it. Listen to your body, seek help,” he said.

“Go through your GP. If you are not happy with the kind of consultation you have, try again with someone else.

“Keep beating the drum. You have to advocate for yourself.”